Publications
More than 100 publications and research posters based on Carenity studies
CKDL5 deficiency disorder (CDD): caregiver’s perception of clinical symptoms, disease management and its impact on quality-of-life
Presented at DSVR (2025) Collaborator: Orion Pharma Authors: Cynthia Lesbros ...
Caregivers’ Voice in Leveraging CDD Burden
Presented at CDKL5 Global Patient Conference (2025) Collaborator: Orion Pharma Authors: ...
Patient Preferences for Treatment Attributes in Inflammatory Bowel Disease: A Discrete Choice Experiment Among Patients in Five Non-Western Countries
Published in Advances in Therapy (2025) Collaborator: Takeda Authors: Marjorie Argollo, ...
Caregivers’ Perceptions of Clinical Symptoms, Disease Management, and Quality of Life Impact in Cases of Cyclin-Dependent Kinase-Like 5 Deficiency Disorder: Cross-Sectional Online Survey
Published in JMIR Formative Research (2025) Collaborator: Orion Corporation Authors: Sam ...
Evaluating Digital Health Solutions in Diabetes and the Role of Patient-Reported Outcomes: Targeted Literature Review
Published in JMIR Diabetes (2025) Collaborator: Roche Authors: Paco Cerletti, Michael ...
Patterns of Use and Patient-Reported Effects of Cannabinoids in People With PD: A Nationwide Survey
Published in Parkinson’s disease (2025) Collaborator: Academics Authors: Tangui Barré, Géraldine ...
Patient perceptions, motivations and barriers to treatment adherence in hypertension: results of a questionnaire-based survey in five European countries
Presented: Taylor & Francis (2025) Collaborator: Servier Authors: Michel Azizi, Julien ...
Factors Influencing the Quality of Life of Stroke Survivors – Results of an Online Survey in the US
Presented at ISPOR (2025) Collaborator: Ipsen Authors: S. Haidar, E. Pain, ...
Experience and Care Pathway of Patients with Lung Cancer: An Online International Survey
Published in Oncology and Therapy (2024) Collaborator: Novartis Authors: Pauline Frank, ...