Publications
More than 100 publications and research posters based on Carenity studies
Patient Perspectives on the Lifelong Impact of Preterm Birth in Chronic Respiratory Disease Care
Presented at DSVR (2025) Collaborator: Chiesi Authors: Valentine Ficara, Emilie Pain, ...
CKDL5 deficiency disorder (CDD): caregiver’s perception of clinical symptoms, disease management and its impact on quality-of-life
Presented at DSVR (2025) Collaborator: Orion Pharma Authors: Cynthia Lesbros ...
Caregivers’ Voice in Leveraging CDD Burden
Presented at CDKL5 Global Patient Conference (2025) Collaborator: Orion Pharma Authors: ...
Patient Preferences for Treatment Attributes in Inflammatory Bowel Disease: A Discrete Choice Experiment Among Patients in Five Non-Western Countries
Published in Advances in Therapy (2025) Collaborator: Takeda Authors: Marjorie Argollo, ...
Caregivers’ Perceptions of Clinical Symptoms, Disease Management, and Quality of Life Impact in Cases of Cyclin-Dependent Kinase-Like 5 Deficiency Disorder: Cross-Sectional Online Survey
Published in JMIR Formative Research (2025) Collaborator: Orion Corporation Authors: Sam ...
Evaluating Digital Health Solutions in Diabetes and the Role of Patient-Reported Outcomes: Targeted Literature Review
Published in JMIR Diabetes (2025) Collaborator: Roche Authors: Paco Cerletti, Michael ...
Patterns of Use and Patient-Reported Effects of Cannabinoids in People With PD: A Nationwide Survey
Published in Parkinson’s disease (2025) Collaborator: Academics Authors: Tangui Barré, Géraldine ...
Patient perceptions, motivations and barriers to treatment adherence in hypertension: results of a questionnaire-based survey in five European countries
Presented: Taylor & Francis (2025) Collaborator: Servier Authors: Michel Azizi, Julien ...
Factors Influencing the Quality of Life of Stroke Survivors – Results of an Online Survey in the US
Presented at ISPOR (2025) Collaborator: Ipsen Authors: S. Haidar, E. Pain, ...