Published in Lupus: SAGE Journals
Collaborator: Marseille Université, Assistance Publique – Hôpitaux de Marseille, Hôpital Européen Marseille
Authors: Meunier B, Jourde N, Mancini J, Chekroun M, Retornaz F, Chiche L
The aim of this study is to provide information about the needs of patients with systemic lupus erythematosus (SLE) using Carenity, the first European online platform for patients with chronic diseases. At one year after its creation, all posts from the Carenity SLE community were collected and analysed. A focused crosssectional online survey was performed. This study shows, for the first time, the feasibility of using data from a community of French patients to obtain insights into the needs and sources of information searched for in the context of a specific disease.