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	<title>Carenity Pro</title>
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	<description>Carenity solutions for professionels</description>
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		<title>Describing the burden of RSV infection and subsequent wheezing in toddlers: an international cross-sectional study</title>
		<link>https://pro.carenity.com/2026/01/16/describing-the-burden-of-rsv-infection-and-subsequent-wheezing-in-toddlers-an-international-cross-sectional-study-2/</link>
					<comments>https://pro.carenity.com/2026/01/16/describing-the-burden-of-rsv-infection-and-subsequent-wheezing-in-toddlers-an-international-cross-sectional-study-2/#respond</comments>
		
		<dc:creator><![CDATA[Asmae Moustansir]]></dc:creator>
		<pubDate>Fri, 16 Jan 2026 10:58:42 +0000</pubDate>
				<category><![CDATA[Featured]]></category>
		<category><![CDATA[Publications]]></category>
		<guid isPermaLink="false">https://pro.carenity.com/?p=25189</guid>

					<description><![CDATA[<p>Presented:EIP (2025)  Collaborator: Sanofi  Authors: Julie Laurent, Valentine Ficara, and Sahar Haidar    Respiratory syncytial virus (RSV) is one of the most common viral respiratory infections globally, with a rising incidence among children under five years of age. This study aimed to describe RSV and subsequent wheezing burden in toddlers ...</p>
<p>The post <a href="https://pro.carenity.com/2026/01/16/describing-the-burden-of-rsv-infection-and-subsequent-wheezing-in-toddlers-an-international-cross-sectional-study-2/">Describing the burden of RSV infection and subsequent wheezing in toddlers: an international cross-sectional study</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></description>
										<content:encoded><![CDATA[<div class="fusion-fullwidth fullwidth-box fusion-builder-row-1 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling" style="background-color: rgba(255,255,255,0);background-position: left top;background-repeat: no-repeat;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-bottom: 0px;margin-top: 0px;border-width: 0px 0px 0px 0px;border-color:#eae9e9;border-style:solid;" ><div class="fusion-builder-row fusion-row"><div class="fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last" style="margin-top:0px;margin-bottom:30px;"><div class="fusion-column-wrapper fusion-flex-column-wrapper-legacy" style="background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;background-color:#ffffff;border-width: 0 0 0 0;border-color:#dddddd;border-style:solid;padding: 0px 0px 0px 0px;"><div class="fusion-column-content-centered"><div class="fusion-column-content"><ul class="fusion-checklist fusion-checklist-1" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-newspaper far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Presented:</strong>EIP (2025)</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-user fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Collaborator:</strong> Sanofi</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-users fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Authors:</strong> Julie Laurent, Valentine Ficara, and Sahar Haidar</p>
</div></li></ul><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:30px;width:100%;"></div><div class="fusion-sep-clear"></div><div class="fusion-text fusion-text-1"><p>Respiratory syncytial virus (RSV) is one of the most common viral respiratory infections globally, with a rising incidence among children under five years of age. This study aimed to describe RSV and subsequent wheezing burden in toddlers infected between the ages of 6 and 24 months and their parents.</p>
</div><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:10px;width:100%;"></div><div class="fusion-sep-clear"></div><ul class="fusion-checklist fusion-checklist-2" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-no"><i class="fusion-li-icon fa-file-pdf far" style="color:#f01168;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><a href="https://cdn-membre.carenity.com/docs/RugoSABCS-2025-Final-SML-Carenity_Poster_21Nov2025-1765903609.pdf" target="_blank" rel="noopener">Read the original article</a></p>
</div></li></ul></div></div><div class="fusion-clearfix"></div></div></div></div></div>
<p>The post <a href="https://pro.carenity.com/2026/01/16/describing-the-burden-of-rsv-infection-and-subsequent-wheezing-in-toddlers-an-international-cross-sectional-study-2/">Describing the burden of RSV infection and subsequent wheezing in toddlers: an international cross-sectional study</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></content:encoded>
					
					<wfw:commentRss>https://pro.carenity.com/2026/01/16/describing-the-burden-of-rsv-infection-and-subsequent-wheezing-in-toddlers-an-international-cross-sectional-study-2/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
			</item>
		<item>
		<title>Real-World Patient and Caregiver Experiences With Breast Cancer Risk of Recurrence in the US: Results of an Online Survey and Social Media Analysis</title>
		<link>https://pro.carenity.com/2025/12/16/real-world-patient-and-caregiver-experiences-with-breast-cancer-risk-of-recurrence-in-the-us-results-of-an-online-survey-and-social-media-analysis/</link>
					<comments>https://pro.carenity.com/2025/12/16/real-world-patient-and-caregiver-experiences-with-breast-cancer-risk-of-recurrence-in-the-us-results-of-an-online-survey-and-social-media-analysis/#respond</comments>
		
		<dc:creator><![CDATA[Asmae Moustansir]]></dc:creator>
		<pubDate>Tue, 16 Dec 2025 16:27:58 +0000</pubDate>
				<category><![CDATA[Featured]]></category>
		<category><![CDATA[Publications]]></category>
		<guid isPermaLink="false">https://pro.carenity.com/?p=25178</guid>

					<description><![CDATA[<p>Presented in SABCS – 2025  Collaborator: Novartis  Authors: Hope S. Rugo, Megan-Claire Chase, Megan Rutt, Mary Lou Smith, Sue Weldon, Emilie Pain, Gaurav Vadnerkar, Tamalika Sen, Shiva Padhi, Nimisha Nadimpalli, Liz Santarsiero, Corinth Auld, Nadia Harbeck, Anees B. Chagpar    Patients with hormone receptor–positive (HR+)/human epidermal growth factor receptor 2– ...</p>
<p>The post <a href="https://pro.carenity.com/2025/12/16/real-world-patient-and-caregiver-experiences-with-breast-cancer-risk-of-recurrence-in-the-us-results-of-an-online-survey-and-social-media-analysis/">Real-World Patient and Caregiver Experiences With Breast Cancer Risk of Recurrence in the US: Results of an Online Survey and Social Media Analysis</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></description>
										<content:encoded><![CDATA[<div class="fusion-fullwidth fullwidth-box fusion-builder-row-2 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling" style="background-color: rgba(255,255,255,0);background-position: left top;background-repeat: no-repeat;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-bottom: 0px;margin-top: 0px;border-width: 0px 0px 0px 0px;border-color:#eae9e9;border-style:solid;" ><div class="fusion-builder-row fusion-row"><div class="fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last" style="margin-top:0px;margin-bottom:30px;"><div class="fusion-column-wrapper fusion-flex-column-wrapper-legacy" style="background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;background-color:#ffffff;border-width: 0 0 0 0;border-color:#dddddd;border-style:solid;padding: 0px 0px 0px 0px;"><div class="fusion-column-content-centered"><div class="fusion-column-content"><ul class="fusion-checklist fusion-checklist-3" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-newspaper far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Presented </strong>in SABCS – 2025</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-user fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Collaborator:</strong> Novartis</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-users fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Authors:</strong> Hope S. Rugo, Megan-Claire Chase, Megan Rutt, Mary Lou Smith, Sue Weldon, Emilie Pain, Gaurav Vadnerkar, Tamalika Sen, Shiva Padhi, Nimisha Nadimpalli, Liz Santarsiero, Corinth Auld, Nadia Harbeck, Anees B. Chagpar</p>
</div></li></ul><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:30px;width:100%;"></div><div class="fusion-sep-clear"></div><div class="fusion-text fusion-text-2"><p>Patients with hormone receptor–positive (HR+)/human epidermal growth factor receptor 2– negative (HER2−) early breast cancer (EBC) remain at risk of early (≤5 years) and late (&gt;5 years) disease recurrences despite standard-of-care adjuvant endocrine therapy.</p>
<p>Up to 27% of all patients with BC will recur within 10 years of diagnosis, particularly if initially diagnosed at stage II or III where recurrence rates are 41% and 63%, respectively. Currently, there is little published evidence related to the concerns of patients and caregivers concerning risk of recurrence (ROR). Lack of awareness about ROR has considerable impact on patient and caregiver quality of life, which may result in emotional distress from being unprepared about the true ROR.<br />
Here, we present important insights on ROR through the combined results of an online patient survey and subsequent social media analysis (SMA) of patients and caregivers.</p>
</div><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:10px;width:100%;"></div><div class="fusion-sep-clear"></div><ul class="fusion-checklist fusion-checklist-4" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-no"><i class="fusion-li-icon fa-file-pdf far" style="color:#f01168;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><a href="https://cdn-membre.carenity.com/docs/RugoSABCS-2025-Final-SML-Carenity_Poster_21Nov2025-1765903609.pdf" target="_blank" rel="noopener">Read the original article</a></p>
</div></li></ul></div></div><div class="fusion-clearfix"></div></div></div></div></div>
<p>The post <a href="https://pro.carenity.com/2025/12/16/real-world-patient-and-caregiver-experiences-with-breast-cancer-risk-of-recurrence-in-the-us-results-of-an-online-survey-and-social-media-analysis/">Real-World Patient and Caregiver Experiences With Breast Cancer Risk of Recurrence in the US: Results of an Online Survey and Social Media Analysis</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></content:encoded>
					
					<wfw:commentRss>https://pro.carenity.com/2025/12/16/real-world-patient-and-caregiver-experiences-with-breast-cancer-risk-of-recurrence-in-the-us-results-of-an-online-survey-and-social-media-analysis/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
			</item>
		<item>
		<title>Describing the burden of RSV infection and subsequent wheezing in toddlers: an international cross-sectional study</title>
		<link>https://pro.carenity.com/2025/09/28/describing-the-burden-of-rsv-infection-and-subsequent-wheezing-in-toddlers-an-international-cross-sectional-study/</link>
					<comments>https://pro.carenity.com/2025/09/28/describing-the-burden-of-rsv-infection-and-subsequent-wheezing-in-toddlers-an-international-cross-sectional-study/#respond</comments>
		
		<dc:creator><![CDATA[Asmae Moustansir]]></dc:creator>
		<pubDate>Sun, 28 Sep 2025 14:43:47 +0000</pubDate>
				<category><![CDATA[Featured]]></category>
		<category><![CDATA[Publications]]></category>
		<guid isPermaLink="false">https://pro.carenity.com/?p=25147</guid>

					<description><![CDATA[<p>Presented in ERS – 2025  Collaborator: Sanofi  Authors: Julie Laurent, Valentine Ficara, Sahar Haidar    Respiratory syncytial virus (RSV) is a leading cause of respiratory tract infection in children. This study aimed to describe RSV and subsequent wheezing burden in toddlers aged 6 to 24 months and their parents.   ...</p>
<p>The post <a href="https://pro.carenity.com/2025/09/28/describing-the-burden-of-rsv-infection-and-subsequent-wheezing-in-toddlers-an-international-cross-sectional-study/">Describing the burden of RSV infection and subsequent wheezing in toddlers: an international cross-sectional study</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></description>
										<content:encoded><![CDATA[<div class="fusion-fullwidth fullwidth-box fusion-builder-row-3 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling" style="background-color: rgba(255,255,255,0);background-position: left top;background-repeat: no-repeat;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-bottom: 0px;margin-top: 0px;border-width: 0px 0px 0px 0px;border-color:#eae9e9;border-style:solid;" ><div class="fusion-builder-row fusion-row"><div class="fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last" style="margin-top:0px;margin-bottom:30px;"><div class="fusion-column-wrapper fusion-flex-column-wrapper-legacy" style="background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;background-color:#ffffff;border-width: 0 0 0 0;border-color:#dddddd;border-style:solid;padding: 0px 0px 0px 0px;"><div class="fusion-column-content-centered"><div class="fusion-column-content"><ul class="fusion-checklist fusion-checklist-5" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-newspaper far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Presented </strong>in ERS – 2025</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-user fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Collaborator:</strong> Sanofi</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-users fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Authors:</strong> Julie Laurent, Valentine Ficara, Sahar Haidar</p>
</div></li></ul><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:30px;width:100%;"></div><div class="fusion-sep-clear"></div><div class="fusion-text fusion-text-3"><p>Respiratory syncytial virus (RSV) is a leading cause of respiratory tract infection in children. This study aimed to describe RSV and subsequent wheezing burden in toddlers aged 6 to 24 months and their parents.</p>
</div><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:10px;width:100%;"></div><div class="fusion-sep-clear"></div><ul class="fusion-checklist fusion-checklist-6" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-no"><i class="fusion-li-icon fa-file-pdf far" style="color:#f01168;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><a href="https://cdn-membre.carenity.com/docs/POSTER_RSV_-TODDLERS_Final-1759500670.pdf" target="_blank" rel="noopener">Read the original article</a></p>
</div></li></ul></div></div><div class="fusion-clearfix"></div></div></div></div></div>
<p>The post <a href="https://pro.carenity.com/2025/09/28/describing-the-burden-of-rsv-infection-and-subsequent-wheezing-in-toddlers-an-international-cross-sectional-study/">Describing the burden of RSV infection and subsequent wheezing in toddlers: an international cross-sectional study</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></content:encoded>
					
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			</item>
		<item>
		<title>A discrete choice experiment analysis to understand patient preferences for multiple myeloma treatments</title>
		<link>https://pro.carenity.com/2025/09/16/a-discrete-choice-experiment-analysis-to-understand-patient-preferences-for-multiple-myeloma-treatments/</link>
					<comments>https://pro.carenity.com/2025/09/16/a-discrete-choice-experiment-analysis-to-understand-patient-preferences-for-multiple-myeloma-treatments/#respond</comments>
		
		<dc:creator><![CDATA[Asmae Moustansir]]></dc:creator>
		<pubDate>Tue, 16 Sep 2025 14:41:23 +0000</pubDate>
				<category><![CDATA[Featured]]></category>
		<category><![CDATA[Publications]]></category>
		<guid isPermaLink="false">https://pro.carenity.com/?p=25136</guid>

					<description><![CDATA[<p>Published in Frontiers in Oncology – 2025  Collaborator: Johnson &amp; Johnson  Authors: Beth Faiman, Hoa H. Le, Julie Laurent, Saurabh Patel, Agne Paner-Straseviciute, Xinke Zhang, Joseph Mikhae    Multiple myeloma (MM) is a malignant plasma cell disorder characterized by the clonal expansion of abnormal plasma cells within the bone marrow. The ...</p>
<p>The post <a href="https://pro.carenity.com/2025/09/16/a-discrete-choice-experiment-analysis-to-understand-patient-preferences-for-multiple-myeloma-treatments/">A discrete choice experiment analysis to understand patient preferences for multiple myeloma treatments</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></description>
										<content:encoded><![CDATA[<div class="fusion-fullwidth fullwidth-box fusion-builder-row-4 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling" style="background-color: rgba(255,255,255,0);background-position: left top;background-repeat: no-repeat;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-bottom: 0px;margin-top: 0px;border-width: 0px 0px 0px 0px;border-color:#eae9e9;border-style:solid;" ><div class="fusion-builder-row fusion-row"><div class="fusion-layout-column fusion_builder_column fusion-builder-column-3 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last" style="margin-top:0px;margin-bottom:30px;"><div class="fusion-column-wrapper fusion-flex-column-wrapper-legacy" style="background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;background-color:#ffffff;border-width: 0 0 0 0;border-color:#dddddd;border-style:solid;padding: 0px 0px 0px 0px;"><div class="fusion-column-content-centered"><div class="fusion-column-content"><ul class="fusion-checklist fusion-checklist-7" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-newspaper far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Published</strong> in Frontiers in Oncology – 2025</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-user fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Collaborator:</strong> Johnson &amp; Johnson</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-users fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Authors:</strong> Beth Faiman, Hoa H. Le, Julie Laurent, Saurabh Patel, Agne Paner-Straseviciute, Xinke<br />
Zhang, Joseph Mikhae</p>
</div></li></ul><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:30px;width:100%;"></div><div class="fusion-sep-clear"></div><div class="fusion-text fusion-text-4"><p>Multiple myeloma (MM) is a malignant plasma cell disorder characterized by the clonal expansion of abnormal plasma cells within the bone marrow. The management of relapsed/refractory multiple myeloma (RRMM) represents a significant challenge as the disease relapses or becomes<br />
refractory to previous treatments. Recent advances in therapy have expanded RRMM treatment options. This study aimed to gain a deeper understanding of patients&#8217; treatment preferences regarding available therapeutic options.</p>
</div><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:10px;width:100%;"></div><div class="fusion-sep-clear"></div><ul class="fusion-checklist fusion-checklist-8" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-no"><i class="fusion-li-icon fa-file-pdf far" style="color:#f01168;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><a href="https://www.frontiersin.org/journals/oncology/articles/10.3389/fonc.2025.1628121/full" target="_blank" rel="noopener">Read the original article</a></p>
</div></li></ul></div></div><div class="fusion-clearfix"></div></div></div></div></div>
<p>The post <a href="https://pro.carenity.com/2025/09/16/a-discrete-choice-experiment-analysis-to-understand-patient-preferences-for-multiple-myeloma-treatments/">A discrete choice experiment analysis to understand patient preferences for multiple myeloma treatments</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></content:encoded>
					
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		<title>Patient survey in immune thrombocytopenia (ITP): Identifying unmet needs related to treatment and disease control in patients living in the United States</title>
		<link>https://pro.carenity.com/2025/08/17/evaluating-digital-health-solutions-in-diabetes-and-the-role-of-patient-reported-outcomes-targeted-literature-review-2/</link>
					<comments>https://pro.carenity.com/2025/08/17/evaluating-digital-health-solutions-in-diabetes-and-the-role-of-patient-reported-outcomes-targeted-literature-review-2/#respond</comments>
		
		<dc:creator><![CDATA[Asmae Moustansir]]></dc:creator>
		<pubDate>Sun, 17 Aug 2025 13:30:47 +0000</pubDate>
				<category><![CDATA[Featured]]></category>
		<category><![CDATA[Publications]]></category>
		<guid isPermaLink="false">https://pro.carenity.com/?p=25074</guid>

					<description><![CDATA[<p>Published in British Journal of Haematology (2025)  Collaborator: Sanofi  Authors: Nichola Cooper, Caroline Kruse, Sharon Deneen Morgan, Julie Laurent, Marleni Arvelo- Saillant, Jean-Pascal Roussy, Matias Cordoba, Imene Gouia, Lisa-Anne Schmitt, Erin Reineke, Terry Gernsheimer    Immune thrombocytopenia (ITP) is a chronic disease with primary therapeutic goals of platelet count recovery ...</p>
<p>The post <a href="https://pro.carenity.com/2025/08/17/evaluating-digital-health-solutions-in-diabetes-and-the-role-of-patient-reported-outcomes-targeted-literature-review-2/">Patient survey in immune thrombocytopenia (ITP): Identifying unmet needs related to treatment and disease control in patients living in the United States</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></description>
										<content:encoded><![CDATA[<div class="fusion-fullwidth fullwidth-box fusion-builder-row-5 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling" style="background-color: rgba(255,255,255,0);background-position: left top;background-repeat: no-repeat;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-bottom: 0px;margin-top: 0px;border-width: 0px 0px 0px 0px;border-color:#eae9e9;border-style:solid;" ><div class="fusion-builder-row fusion-row"><div class="fusion-layout-column fusion_builder_column fusion-builder-column-4 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last" style="margin-top:0px;margin-bottom:30px;"><div class="fusion-column-wrapper fusion-flex-column-wrapper-legacy" style="background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;background-color:#ffffff;border-width: 0 0 0 0;border-color:#dddddd;border-style:solid;padding: 0px 0px 0px 0px;"><div class="fusion-column-content-centered"><div class="fusion-column-content"><ul class="fusion-checklist fusion-checklist-9" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-newspaper far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Published</strong> in British Journal of Haematology (2025)</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-user fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Collaborator:</strong> Sanofi</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-users fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Authors:</strong> Nichola Cooper, Caroline Kruse, Sharon Deneen Morgan, Julie Laurent, Marleni Arvelo-<br />
Saillant, Jean-Pascal Roussy, Matias Cordoba, Imene Gouia, Lisa-Anne Schmitt, Erin Reineke, Terry<br />
Gernsheimer</p>
</div></li></ul><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:30px;width:100%;"></div><div class="fusion-sep-clear"></div><div class="fusion-text fusion-text-5"><p>Immune thrombocytopenia (ITP) is a chronic disease with primary therapeutic goals of platelet<br />
count recovery to safe levels to minimize active/future bleeding, alongside easing additional<br />
symptoms negatively impacting overall patient well-being with consequent improvement in<br />
physical fatigue/energy levels, daily/work-related activities and social/emotional health.<br />
Documentation of this rare disease is important for evaluating real-world experiences in treatment<br />
satisfaction, expectations and unmet needs in disease management.<br />
This study examined patient experiences and preferences, treatment satisfaction and expectations<br />
and unmet patient needs related to disease management and control based on the outcomes of a<br />
survey conducted in adults with ITP.</p>
</div><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:10px;width:100%;"></div><div class="fusion-sep-clear"></div><ul class="fusion-checklist fusion-checklist-10" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-no"><i class="fusion-li-icon fa-file-pdf far" style="color:#f01168;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><a href="https://onlinelibrary.wiley.com/doi/10.1111/bjh.20257" target="_blank" rel="noopener">Read the original article</a></p>
</div></li></ul></div></div><div class="fusion-clearfix"></div></div></div></div></div>
<p>The post <a href="https://pro.carenity.com/2025/08/17/evaluating-digital-health-solutions-in-diabetes-and-the-role-of-patient-reported-outcomes-targeted-literature-review-2/">Patient survey in immune thrombocytopenia (ITP): Identifying unmet needs related to treatment and disease control in patients living in the United States</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></content:encoded>
					
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		<title>Perceptions of use and value for different types of digital health solutions among people with type 1 and 2 diabetes in France</title>
		<link>https://pro.carenity.com/2025/08/08/perceptions-of-use-and-value-for-different-types-of-digital-health-solutions-among-people-with-type-1-and-2-diabetes-in-france/</link>
					<comments>https://pro.carenity.com/2025/08/08/perceptions-of-use-and-value-for-different-types-of-digital-health-solutions-among-people-with-type-1-and-2-diabetes-in-france/#respond</comments>
		
		<dc:creator><![CDATA[Asmae Moustansir]]></dc:creator>
		<pubDate>Fri, 08 Aug 2025 13:11:15 +0000</pubDate>
				<category><![CDATA[Featured]]></category>
		<category><![CDATA[Publications]]></category>
		<guid isPermaLink="false">https://pro.carenity.com/?p=25073</guid>

					<description><![CDATA[<p>Published in Acta Diabetologica (2025)  Collaborator: Roche  Authors: Norbert Hermanns, Paco Cerletti, Julie Laurent, Renza Scibilia, Sören Skovlund    This study examines the use, perceptions, and inequalities in access to Digital Health Solutions (DHS) among people with diabetes (PwD). It aims to identify factors influencing adoption and explore perceived benefits ...</p>
<p>The post <a href="https://pro.carenity.com/2025/08/08/perceptions-of-use-and-value-for-different-types-of-digital-health-solutions-among-people-with-type-1-and-2-diabetes-in-france/">Perceptions of use and value for different types of digital health solutions among people with type 1 and 2 diabetes in France</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></description>
										<content:encoded><![CDATA[<div class="fusion-fullwidth fullwidth-box fusion-builder-row-6 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling" style="background-color: rgba(255,255,255,0);background-position: left top;background-repeat: no-repeat;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-bottom: 0px;margin-top: 0px;border-width: 0px 0px 0px 0px;border-color:#eae9e9;border-style:solid;" ><div class="fusion-builder-row fusion-row"><div class="fusion-layout-column fusion_builder_column fusion-builder-column-5 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last" style="margin-top:0px;margin-bottom:30px;"><div class="fusion-column-wrapper fusion-flex-column-wrapper-legacy" style="background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;background-color:#ffffff;border-width: 0 0 0 0;border-color:#dddddd;border-style:solid;padding: 0px 0px 0px 0px;"><div class="fusion-column-content-centered"><div class="fusion-column-content"><ul class="fusion-checklist fusion-checklist-11" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-newspaper far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Published</strong> in Acta Diabetologica (2025)</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-user fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Collaborator:</strong> Roche</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-users fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Authors:</strong> Norbert Hermanns, Paco Cerletti, Julie Laurent, Renza Scibilia, Sören Skovlund</p>
</div></li></ul><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:30px;width:100%;"></div><div class="fusion-sep-clear"></div><div class="fusion-text fusion-text-6"><p>This study examines the use, perceptions, and inequalities in access to Digital Health Solutions (DHS) among people with diabetes (PwD). It aims to identify factors influencing adoption and explore perceived benefits and barriers to using DHS, focusing on person-important outcomes such as physical health, mental burden, and access to care.</p>
</div><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:10px;width:100%;"></div><div class="fusion-sep-clear"></div><ul class="fusion-checklist fusion-checklist-12" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-no"><i class="fusion-li-icon fa-file-pdf far" style="color:#f01168;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><a href="https://link.springer.com/article/10.1007/s00592-025-02564-6" target="_blank" rel="noopener">Read the original article</a></p>
</div></li></ul></div></div><div class="fusion-clearfix"></div></div></div></div></div>
<p>The post <a href="https://pro.carenity.com/2025/08/08/perceptions-of-use-and-value-for-different-types-of-digital-health-solutions-among-people-with-type-1-and-2-diabetes-in-france/">Perceptions of use and value for different types of digital health solutions among people with type 1 and 2 diabetes in France</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></content:encoded>
					
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		<title>Patient Perspectives on the Lifelong Impact of Preterm Birth in Chronic Respiratory Disease Care</title>
		<link>https://pro.carenity.com/2025/07/03/patient-perspectives-on-the-lifelong-impact-of-preterm-birth-in-chronic-respiratory-disease-care/</link>
					<comments>https://pro.carenity.com/2025/07/03/patient-perspectives-on-the-lifelong-impact-of-preterm-birth-in-chronic-respiratory-disease-care/#respond</comments>
		
		<dc:creator><![CDATA[Asmae Moustansir]]></dc:creator>
		<pubDate>Thu, 03 Jul 2025 13:15:01 +0000</pubDate>
				<category><![CDATA[Featured]]></category>
		<category><![CDATA[Publications]]></category>
		<guid isPermaLink="false">https://pro.carenity.com/?p=25128</guid>

					<description><![CDATA[<p>Presented at DSVR (2025)  Collaborator: Chiesi  Authors: Valentine Ficara, Emilie Pain, Cynthia Lesbros    Approximately 15 million infants are born prematurely each year. Preterm status is often associated with lifelong chronic respiratory conditions, such as asthma and Chronic Obstructive Pulmonary Disease (COPD) [2]. Data on prematurity impact on respiratory disease ...</p>
<p>The post <a href="https://pro.carenity.com/2025/07/03/patient-perspectives-on-the-lifelong-impact-of-preterm-birth-in-chronic-respiratory-disease-care/">Patient Perspectives on the Lifelong Impact of Preterm Birth in Chronic Respiratory Disease Care</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></description>
										<content:encoded><![CDATA[<div class="fusion-fullwidth fullwidth-box fusion-builder-row-7 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling" style="background-color: rgba(255,255,255,0);background-position: left top;background-repeat: no-repeat;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-bottom: 0px;margin-top: 0px;border-width: 0px 0px 0px 0px;border-color:#eae9e9;border-style:solid;" ><div class="fusion-builder-row fusion-row"><div class="fusion-layout-column fusion_builder_column fusion-builder-column-6 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last" style="margin-top:0px;margin-bottom:30px;"><div class="fusion-column-wrapper fusion-flex-column-wrapper-legacy" style="background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;background-color:#ffffff;border-width: 0 0 0 0;border-color:#dddddd;border-style:solid;padding: 0px 0px 0px 0px;"><div class="fusion-column-content-centered"><div class="fusion-column-content"><ul class="fusion-checklist fusion-checklist-13" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-newspaper far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Presented at </strong>DSVR (2025)</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-user far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Collaborator: </strong>Chiesi</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-users fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Authors:</strong> Valentine Ficara, Emilie Pain, Cynthia Lesbros</p>
</div></li></ul><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:30px;width:100%;"></div><div class="fusion-sep-clear"></div><div class="fusion-text fusion-text-7"><p>Approximately 15 million infants are born prematurely each year. Preterm status is often associated with lifelong chronic respiratory conditions, such as asthma and Chronic Obstructive Pulmonary Disease (COPD) [2]. Data on prematurity impact on respiratory disease progression and management in adulthood remain limited. This study aims to investigate patient awareness of their preterm status, its perceived impact on their respiratory health, and how healthcare professionals<br />
(HCPs) consider preterm status when managing these conditions.</p>
</div><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:10px;width:100%;"></div><div class="fusion-sep-clear"></div><ul class="fusion-checklist fusion-checklist-14" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-no"><i class="fusion-li-icon fa-file-pdf far" style="color:#f01168;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><a href="https://cdn-membre.carenity.com/docs/Poster_Chiesi_DSVR_V3-1751665404.pdf" target="_blank" rel="noopener">Access to the poster</a></p>
</div></li></ul></div></div><div class="fusion-clearfix"></div></div></div></div></div>
<p>The post <a href="https://pro.carenity.com/2025/07/03/patient-perspectives-on-the-lifelong-impact-of-preterm-birth-in-chronic-respiratory-disease-care/">Patient Perspectives on the Lifelong Impact of Preterm Birth in Chronic Respiratory Disease Care</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></content:encoded>
					
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		<title>CKDL5 deficiency disorder (CDD): caregiver&#8217;s perception of clinical symptoms, disease management and its impact on quality-of-life</title>
		<link>https://pro.carenity.com/2025/07/03/ckdl5-deficiency-disorder-cdd-caregivers-perception-of-clinical-symptoms-disease-management-and-its-impact-on-quality-of-life/</link>
					<comments>https://pro.carenity.com/2025/07/03/ckdl5-deficiency-disorder-cdd-caregivers-perception-of-clinical-symptoms-disease-management-and-its-impact-on-quality-of-life/#respond</comments>
		
		<dc:creator><![CDATA[Asmae Moustansir]]></dc:creator>
		<pubDate>Thu, 03 Jul 2025 12:53:52 +0000</pubDate>
				<category><![CDATA[Featured]]></category>
		<category><![CDATA[Publications]]></category>
		<guid isPermaLink="false">https://pro.carenity.com/?p=25125</guid>

					<description><![CDATA[<p>Presented at DSVR (2025)  Collaborator: Orion Pharma  Authors: Cynthia Lesbros    CDD is a developmental epileptic encephalopathy condition causing severe developmental delay, epileptic seizures, important psychomotor impairment with limited communication skills from the first months of life. The objective was to better understand the burden of CDD on both patients ...</p>
<p>The post <a href="https://pro.carenity.com/2025/07/03/ckdl5-deficiency-disorder-cdd-caregivers-perception-of-clinical-symptoms-disease-management-and-its-impact-on-quality-of-life/">CKDL5 deficiency disorder (CDD): caregiver&#8217;s perception of clinical symptoms, disease management and its impact on quality-of-life</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></description>
										<content:encoded><![CDATA[<div class="fusion-fullwidth fullwidth-box fusion-builder-row-8 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling" style="background-color: rgba(255,255,255,0);background-position: left top;background-repeat: no-repeat;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-bottom: 0px;margin-top: 0px;border-width: 0px 0px 0px 0px;border-color:#eae9e9;border-style:solid;" ><div class="fusion-builder-row fusion-row"><div class="fusion-layout-column fusion_builder_column fusion-builder-column-7 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last" style="margin-top:0px;margin-bottom:30px;"><div class="fusion-column-wrapper fusion-flex-column-wrapper-legacy" style="background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;background-color:#ffffff;border-width: 0 0 0 0;border-color:#dddddd;border-style:solid;padding: 0px 0px 0px 0px;"><div class="fusion-column-content-centered"><div class="fusion-column-content"><ul class="fusion-checklist fusion-checklist-15" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-newspaper far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Presented at </strong>DSVR (2025)</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-user far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Collaborator: </strong>Orion Pharma</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-users fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Authors:</strong> Cynthia Lesbros</p>
</div></li></ul><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:30px;width:100%;"></div><div class="fusion-sep-clear"></div><div class="fusion-text fusion-text-8"><p>CDD is a developmental epileptic encephalopathy condition causing severe developmental delay, epileptic seizures, important psychomotor impairment with limited communication skills from the first months of life. The objective was to better understand the burden of CDD on both patients and their family from the perspective of caregivers.</p>
</div><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:10px;width:100%;"></div><div class="fusion-sep-clear"></div><ul class="fusion-checklist fusion-checklist-16" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-no"><i class="fusion-li-icon fa-file-pdf far" style="color:#f01168;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><a href="https://cdn-membre.carenity.com/docs/CDD-caregivers-burden-DSVR2025-C-LESBROS-1751665737.pdf" target="_blank" rel="noopener">Access to the poster</a></p>
</div></li></ul></div></div><div class="fusion-clearfix"></div></div></div></div></div>
<p>The post <a href="https://pro.carenity.com/2025/07/03/ckdl5-deficiency-disorder-cdd-caregivers-perception-of-clinical-symptoms-disease-management-and-its-impact-on-quality-of-life/">CKDL5 deficiency disorder (CDD): caregiver&#8217;s perception of clinical symptoms, disease management and its impact on quality-of-life</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
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		<title>Caregivers’ Voice in Leveraging CDD Burden</title>
		<link>https://pro.carenity.com/2025/06/27/caregivers-voice-in-leveraging-cdd-burden/</link>
					<comments>https://pro.carenity.com/2025/06/27/caregivers-voice-in-leveraging-cdd-burden/#respond</comments>
		
		<dc:creator><![CDATA[Asmae Moustansir]]></dc:creator>
		<pubDate>Fri, 27 Jun 2025 15:36:53 +0000</pubDate>
				<category><![CDATA[Featured]]></category>
		<category><![CDATA[Publications]]></category>
		<guid isPermaLink="false">https://pro.carenity.com/?p=25116</guid>

					<description><![CDATA[<p>Presented at CDKL5 Global Patient Conference (2025)  Collaborator: Orion Pharma  Authors: Sam Amin, Carol-Anne Partridge, Helen Leonard, Jenny Downs, Helen Allvin, Valentine Ficara, Emilie Pain, Minna A Korolainen    This study was designed to do something rare: let caregivers tell us the true story, not just through words, but through ...</p>
<p>The post <a href="https://pro.carenity.com/2025/06/27/caregivers-voice-in-leveraging-cdd-burden/">Caregivers’ Voice in Leveraging CDD Burden</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></description>
										<content:encoded><![CDATA[<div class="fusion-fullwidth fullwidth-box fusion-builder-row-9 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling" style="background-color: rgba(255,255,255,0);background-position: left top;background-repeat: no-repeat;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-bottom: 0px;margin-top: 0px;border-width: 0px 0px 0px 0px;border-color:#eae9e9;border-style:solid;" ><div class="fusion-builder-row fusion-row"><div class="fusion-layout-column fusion_builder_column fusion-builder-column-8 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last" style="margin-top:0px;margin-bottom:30px;"><div class="fusion-column-wrapper fusion-flex-column-wrapper-legacy" style="background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;background-color:#ffffff;border-width: 0 0 0 0;border-color:#dddddd;border-style:solid;padding: 0px 0px 0px 0px;"><div class="fusion-column-content-centered"><div class="fusion-column-content"><ul class="fusion-checklist fusion-checklist-17" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-newspaper far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Presented at </strong>CDKL5 Global Patient Conference (2025)</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-user far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Collaborator: </strong>Orion Pharma</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-users fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Authors:</strong> Sam Amin, Carol-Anne Partridge, Helen Leonard, Jenny Downs, Helen Allvin, Valentine<br />
Ficara, Emilie Pain, Minna A Korolainen</p>
</div></li></ul><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:30px;width:100%;"></div><div class="fusion-sep-clear"></div><div class="fusion-text fusion-text-9"><p>This study was designed to do something rare: let caregivers tell us the true story, not just through words, but through data that regulators, pharma, and policy makers will listen to</p>
</div><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:10px;width:100%;"></div><div class="fusion-sep-clear"></div><ul class="fusion-checklist fusion-checklist-18" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-no"><i class="fusion-li-icon fa-file-pdf far" style="color:#f01168;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><a href="https://cdn-membre.carenity.com/docs/Rome-2025-CDKL5-presentation-Final-1751352228.pdf" target="_blank" rel="noopener">Access to the poster</a></p>
</div></li></ul></div></div><div class="fusion-clearfix"></div></div></div></div></div>
<p>The post <a href="https://pro.carenity.com/2025/06/27/caregivers-voice-in-leveraging-cdd-burden/">Caregivers’ Voice in Leveraging CDD Burden</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></content:encoded>
					
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		<title>Patient Preferences for Treatment Attributes in Inflammatory Bowel Disease: A Discrete Choice Experiment Among Patients in Five Non-Western Countries</title>
		<link>https://pro.carenity.com/2025/06/17/p-a-g-e-12-72-patient-preferences-for-treatment-attributes-in-inflammatory-bowel-disease-a-discrete-choice-experiment-among-patients-in-five-non-western-countries/</link>
					<comments>https://pro.carenity.com/2025/06/17/p-a-g-e-12-72-patient-preferences-for-treatment-attributes-in-inflammatory-bowel-disease-a-discrete-choice-experiment-among-patients-in-five-non-western-countries/#respond</comments>
		
		<dc:creator><![CDATA[Asmae Moustansir]]></dc:creator>
		<pubDate>Tue, 17 Jun 2025 12:46:13 +0000</pubDate>
				<category><![CDATA[Featured]]></category>
		<category><![CDATA[Publications]]></category>
		<guid isPermaLink="false">https://pro.carenity.com/?p=25070</guid>

					<description><![CDATA[<p>Published in Advances in Therapy (2025)  Collaborator: Takeda  Authors: Marjorie Argollo, Yoon K. An, Nahla Azzam, Domingo C. Balderramo, Olga Fadeeva, Chia- Jung Kuo, Julie Laurent, Elenore Uy    Understanding patient preferences is important for facilitating informed decision-making in managing patients with inflammatory bowel disease (IBD). This study explored the ...</p>
<p>The post <a href="https://pro.carenity.com/2025/06/17/p-a-g-e-12-72-patient-preferences-for-treatment-attributes-in-inflammatory-bowel-disease-a-discrete-choice-experiment-among-patients-in-five-non-western-countries/">Patient Preferences for Treatment Attributes in Inflammatory Bowel Disease: A Discrete Choice Experiment Among Patients in Five Non-Western Countries</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
]]></description>
										<content:encoded><![CDATA[<div class="fusion-fullwidth fullwidth-box fusion-builder-row-10 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling" style="background-color: rgba(255,255,255,0);background-position: left top;background-repeat: no-repeat;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;margin-bottom: 0px;margin-top: 0px;border-width: 0px 0px 0px 0px;border-color:#eae9e9;border-style:solid;" ><div class="fusion-builder-row fusion-row"><div class="fusion-layout-column fusion_builder_column fusion-builder-column-9 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last" style="margin-top:0px;margin-bottom:30px;"><div class="fusion-column-wrapper fusion-flex-column-wrapper-legacy" style="background-position:left top;background-repeat:no-repeat;-webkit-background-size:cover;-moz-background-size:cover;-o-background-size:cover;background-size:cover;background-color:#ffffff;border-width: 0 0 0 0;border-color:#dddddd;border-style:solid;padding: 0px 0px 0px 0px;"><div class="fusion-column-content-centered"><div class="fusion-column-content"><ul class="fusion-checklist fusion-checklist-19" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-newspaper far" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Published</strong> in Advances in Therapy (2025)</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-user fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Collaborator:</strong> Takeda</p>
</div></li><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="background-color:#14ccad;font-size:15.84px;height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-yes"><i class="fusion-li-icon fa-users fas" style="color:#ffffff;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><strong>Authors:</strong> Marjorie Argollo, Yoon K. An, Nahla Azzam, Domingo C. Balderramo, Olga Fadeeva, Chia-<br />
Jung Kuo, Julie Laurent, Elenore Uy</p>
</div></li></ul><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:30px;width:100%;"></div><div class="fusion-sep-clear"></div><div class="fusion-text fusion-text-10"><p>Understanding patient preferences is important for facilitating informed decision-making in managing patients with inflammatory bowel disease (IBD). This study explored the preferences of patients with Crohn’s disease (CD) and ulcerative colitis (UC) regarding advanced therapy treatment attributes in five non-Western countries: Argentina, Australia, Brazil, Saudi Arabia and Taiwan.</p>
</div><div class="fusion-sep-clear"></div><div class="fusion-separator fusion-full-width-sep" style="margin-left: auto;margin-right: auto;margin-top:10px;width:100%;"></div><div class="fusion-sep-clear"></div><ul class="fusion-checklist fusion-checklist-20" style="font-size:18px;line-height:30.6px;"><li style="background-color:rgba(255,255,255,0);" class="fusion-li-item"><span style="height:30.6px;width:30.6px;margin-right:12.6px;" class="icon-wrapper circle-no"><i class="fusion-li-icon fa-file-pdf far" style="color:#f01168;" aria-hidden="true"></i></span><div class="fusion-li-item-content" style="margin-left:43.2px;color:#7e8890;">
<p><a href="https://link.springer.com/article/10.1007/s12325-025-03249-w#Sec2" target="_blank" rel="noopener">Read the original article</a></p>
</div></li></ul></div></div><div class="fusion-clearfix"></div></div></div></div></div>
<p>The post <a href="https://pro.carenity.com/2025/06/17/p-a-g-e-12-72-patient-preferences-for-treatment-attributes-in-inflammatory-bowel-disease-a-discrete-choice-experiment-among-patients-in-five-non-western-countries/">Patient Preferences for Treatment Attributes in Inflammatory Bowel Disease: A Discrete Choice Experiment Among Patients in Five Non-Western Countries</a> appeared first on <a href="https://pro.carenity.com">Carenity Pro</a>.</p>
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