This study aimed to assess awareness of glycated hemoglobin (A1C) testing and targets, perceived level of glycemic control and risk of complications, attitudes toward medications and self-management, and regimen-related distress in an international sample of patients with type 2 diabetes (T2D).

Acromegaly is a chronic acquired disorder characterized by excessive secretion of growth hormone (GH) and increased insulin-like growth factor 1 (IGF-1) level, caused in most cases by a benign pituitary adenoma. Nowadays, its prevalence may vary between 28 to 137 per million people, while is annual incidence ranges between 2 and 11 cases per million inhabitants. To better understand the impact of acromegaly of patients’ daily life and evaluate the needs and expectations of patients in terms of services and information, a survey was carried out online in patients or relatives who were registered in a social network of individuals with acromegaly?

Virtual online communities help people in coping with complex health issues, such as those present in patients suffering chronic diseases. Further research is required in order to clarify the impact of sharing of personal experiences on the perception of privacy and confidentiality by patients. We studied the case of Carenity an online social network created in France in 2011 bringing together 300,000 patients across Europe, and selected patients suffering Multiple Sclerosis. We conducted an exploratory-descriptive survey, and 253 patients completed an online questionnaire. Most participants did not consider that their privacy was threatened when sharing their personal experiences and data associated with their health condition. As common sense prevents one to share information to strangers to ensure privacy, such paradox may be explained by new strategies to face challenges imposed by chronic conditions disease, where sharing personal experiences may be considered as a complementary source of social support by patients.

Social media are computer-mediated technologies that facilitate the creation & sharing of information and are an important source for Adverse Drug Reaction (ADR) collection. This can help to reduce under-reporting in postmarketing phase products or monitor drug-specific trends.
The present paper aims to provide a more in-depth understanding of the data which can be collected for ADR detection, to estimate bias and limitations across sources and languages.

Patient with chronic conditions are required to take long-term treatments for their disease itself or to prevent any potential health risks. Measuring patient acceptance of their medication should help to better understand and predict patients’ behavior toward treatment. This study aimed to describe the level of patient acceptance toward various long-term treatments in real life using an online patient community.

Management strategies for adult spasticity include physical and pharmacological therapies, as well as surgery in severe or intractable cases. Botulinum toxin type A (BoNT-A) is a recommended pharmacological option for patients with spasticity, and its anti-spastic effects have been demonstrated in stroke and central nervous system lesions, multiple sclerosis and cerebral palsy. The aim of this study is to understand the burden of BoNT-A treatment from the patient perspective, in terms of impact on activities of daily living and quality of life.

Spasticity is caused by an upper motor neuron lesion leading to intermittent or sustained involuntary activation of muscles, and is a symptom of various disorders, including multiple sclerosis (MS), stroke, traumatic brain or spinal cord injury and cerebral palsy. The aim of this study is to understand the burden of spasticity treatment from patient and caregivers perspectives, in terms of impact on employment status, activities of daily living and quality of life.

More than 1 million people were suffering from heart failure (HF) in France in 2017. The ageing population and financial constraints have put a great strain on the French healthcare system. Value-based healthcare (VBHC) is emerging as a possible solution to build a more efficient healthcare system. The objectives are to define and rank the most valued outcomes in medical care for patients affected by heart failure and to better understand patients’ expectations for healthcare organizations and patient support services.

Botulinum toxin type A (BoNT-A) is a recommended pharmacological option for patients with spasticity, and its anti-spastic effects have been demonstrated in stroke and central nervous system lesions, multiple sclerosis and cerebral palsy. The aim of this study is to understand the impact of fewer BoNT-A injections from patient and caregiver perspectives.

Obesity affected approximately 6.9 million of French adults in 2012. The ageing population and financial constraints have put a great strain on the French healthcare system. Value-based healthcare (VBHC) is emerging as a possible solution to build a more efficient healthcare system. The objectives are to define and rank the most valued outcomes in medical care for patients affected by obesity and to better understand patients’ expectations for healthcare organizations and patient support services.